By Site Admin on 3/23/2010 2:57 PM

 

The 2010 Walk-a-thon is being held on June 12th at MacIntire Park in Charlottesville, VA. It will be from 10am - 2pm. Here is a link to the park website which will help with directions and details about the park

http://www.charlottesville.org/Index.aspx?page=367

There will be special speakers, events for the children, vendors, a visit from the 501st Star Wars group and much much more! We hope to see you there.

The Foundation also now has a Facebook page! It can be reached at:

http://www.facebook.com/#!/pages/Ryans-PKU-Foundation-of-Virginia/369251966626?ref=ts

This will allow us to have more frequent posts and updates as well as give us another option for keeping in touch with the rest of the PKU world. Spread the news!

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By Site Admin on 3/22/2010 1:24 PM

It is that time of year again for the 2009 Virginia PKU Walk-A-Thon. WALK FOR PKU RESEARCH SPONSORED BY RYAN’S PKU FOUNDATION OF VIRGINIA

Virginia PKU Walk When:        Saturday, May 9, 2009 from 10:30 am until 2:00 pm Where:        Mount. Trashmore, Virginia Beach, Virginia Schedule:

10:30-11:30am Check in & turn in donations...

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By Site Admin on 3/22/2010 1:22 PM

- The National PKU Alliance is the only non-profit organization dedicated to unifying PKU community through research, education, support and advocacy -   FAIRFAX, VA – June 24, 2008 – The PKU community has joined together to form the first and only National PKU Alliance (NPKUA), a national non-profit organization created  to support individuals, families and loved ones affected by Phenylketonuria, or PKU, a lifelong genetic disorder. The first Board of Directors Meeting on Sunday, June 22, 2008, marked the...

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By Site Admin on 3/22/2010 1:18 PM

Ryan's PKU Foundation's Website is getting a re-design over the next few weeks. We hope to have quite a bit of information, news items, and other helpful information for individuals learning about PKU, or those with PKU. About PKU Phenylketonuria or PKU is an inherited metabolic disorder in which the individual with the disorder is unable to produce a specific enzyme for digestion of the Amino Acid Phenylalanine. This causes a build up in the body which can result in severe mental retardation.

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