It has been nearly a year since I stared this blog as a support site for the loved ones of PKU Adults. While it looks like there has been hardly any activity here, quite a few people have responded via my Facebook page or in person during various PKU events. Recently, I sent information to NPKUA and hope that they might link this page to theirs. The UVA PKU picnic is next weekend as well, and along with hte NPKUA survey, I will have cards out with the info for this blog too. Now, more than ever, is the time to show support for the adults with this condition. They are being left behind and so are the ones who love them.

I just sat down and read my early posts. Not much has changed, excepts that I now know that anything that can be made with ground beef/turkey can be made with mushrooms too! I chuckle over that statement, but it is true. Manwich, tacos, burgers, etc...with mushrooms instead. We are still dealing with Owens weight, still working through food aversions (although he has overcome a couple of them) and now dealing with a couple of other issues (see last post).  We have some questions for Vitaflo and hope to get those resolved this week as well. That is unless anyone reading this knows if the sweetener in the formula is high fructose corn syrup or something else? Owen needs to reduce the hfcs due to the hypoglycemia.

I am hoping that this year will see this blog take off a bit more, but even if it does not, I will not shut it down. Already there have been families that have been helped. Even if it is just one person whose either has PKU or has a loved one with this condition....

Please, send me questions or comments. Together we can work through the mystery of what happens to PKU children once they grow up.