Daylight savings time sure has me messed up. Owen is over here whining that his computer still has not gone the one hour ahead. His levels are back down to a 7 but now his tyrasine levels are low. We are going to report that to Biomarin, just in case. Owen continues to repsond cognitively to Kuvan and we have high hopes.
We are also adjusting to my own new special diet because of my auti-immune condition. I miss tomaotes! There have been many successes with compromise and a few failures. Mashed parsnips being of the failures. We both like rice chips and think they are so much better than doritoes. We have also continued to love brown rice pasta. He has his serving with sauce and mine is with breadcrumbs, walnuts and raisins (a Sicilian tradition).
We are disappointed that things are not going well for the walk-a-thon and will be putting more effort into trying to find sponsors and donors. We are in the midst of house hunting and it looks like I'll be job hunting as well. Even the public schools cannot survive this economy.