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Feb 17

Written by: Holly
2/17/2009 8:59 PM 

Owens levels are back at 8. We knew his blood levels weren't responding as well to Kuvan as we would have liked. However, he has been responding cognitively. For us that is better than anything. My dietary changes have been both good and bad. We discovered that I do have an issue with nightshades, so that makes mealtime more of a challenge. The good side, is that with me eating less wheat products and more rice based items, we can eat the same foods at other meals. 

 

In other news, as you can see from the main page, it is time for our annual walkathon. I am looking forward to this year more than ever. We are busy planning the weekend as well as trying to get donations and raffle items. I hope to see more people involved this year, especially those served through UVA. It has been a fabulous experience in the past.

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